T. Koch et S. Kelly, Identifying strategies for managing urinary incontinence with women who have multiple sclerosis, J CLIN NURS, 8(5), 1999, pp. 550-559
The aim of this pilot project was to identify strategies for managing incon
tinence with women who have multiple sclerosis (MS),
The project used the formation of a group in which eight women with MS and
four Continence Nurse Advisers (CNAs) and the first author were brought tog
ether.
In the course of the research process, the women found a voice on a topic p
reviously thought of as taboo. When they realized that they had suffered al
one and in silence they felt empowered to act.
In this way, the methodology evolved fi om group work; into a participatory
action research process (PAR), as the group initiated action.
Participants formed a self-help group, and continued to meet: with each oth
er after the research had run its course.