S. Stern et al., Disruption and reconstruction: Narrative insights into the experience of family members caring for a relative diagnosed with serious mental illness, FAM PROCESS, 38(3), 1999, pp. 353-369
The findings of a study investigating carers' accounts about serious mental
illness occurring in their family are presented. The narrative form is a p
rimary means of ordering, structuring, and communicating illness experience
s, reflecting some of the processes that carers intend to master and unders
tand. Psychotic episodes entail a frightening disruption that forces carers
to face fundamental existential, moral, and psychological issues because t
hey call into question the continuity of lives and life-projects. This stud
y has explored how carers articulate the consequences of a devastating expe
rience and turn it into a meaningful event that can in some way be incorpor
ated into the course of their life. Two types of narrative structure were i
dentified. In stories of restitution or reparation, the experience of the e
vent is transformed into phenomena having meaning, occupying a place in car
ers: lives. In chaotic and frozen narratives, the illness remains a series
of random events. The effects on coping of these two narrative types were e
xplored, as well as gender-related themes and beliefs about mastery and con
trol. Therapeutic implications are discussed and also possible connections
to other research constructs (for example, Expressed Emotion). It is argued
that the concept of illness must be approached from tr systemic, multidete
rmined perspective that includes our narrative constructions.