Objective. We aimed to ascertain how often patients seek help for familial
breast cancer in primary care, and to identify GPs management of these pati
ents, in order to see whether guidelines are followed.
Methods. This was a descriptive study. GPs (n = 202) attending a postgradua
te education programme were asked to fill in a questionnaire which included
questions about the number of patients seeking help for familial breast ca
ncer within the last 3 months and about their management strategies.
Results. About 80% of the GPs reported that they referred women with concer
ns about familiar breast cancer for further diagnostics (mammography or ult
rasound). For half these referrals a plan of regular appointments was set u
p, and one-eighth of the referrals included breast examination by a physici
an. Breast self-examination was advised in 50% of the cases. Estimates give
n to women regarding their breast cancer risk varied considerably. There wa
s a strong relationship between risk estimates and management strategies.
Conclusions. Current guidelines regarding surveillance of women with breast
cancer in the family were only partly followed. These guidelines do not gi
ve sufficient information to define whether there is an increased risk for
breast cancer. These guidelines need to be refined.