Objective: To identify and quantify trends in mortality and causes of death
among persons with spinal cord injury.
Design: Cohort study.
Setting: Model spinal cord injury care systems and Shriner's Hospitals spin
al cord injury units throughout the United States.
Patients: A total of 28,239 consecutive persons admitted to the model syste
m or to a Shriner's Hospital within 1 year of injury.
Main Outcome Measure: Length of survival and cause of death.
Results: Among persons who were admitted to the model system within 1 day o
f injury, the odds of dying during the first postinjury year were reduced b
y 67% for persons injured between 1993 and 1998 relative to persons injured
between 1973 and 1977 after adjusting for trends in age, gender, race, neu
rologic level of injury, Frankel grade, ventilator status, etiology of inju
ry, sponsor of care, and model system where treatment occurred. However, mo
rtality rates after the first anniversary of injury, which had also been de
clining from 1973 to 1992, increased 33% for persons injured between 1993 a
nd 1998 relative to persons injured between 1988 and 1992. Respiratory dise
ase was the only cause of death after the first anniversary of injury for w
hich the relative odds increased meaningfully during the latest time period
(76% increase over 1988-1992 compared to all other causes).
Conclusion: While great improvements in life expectancy have been achieved
since the Model SCI Systems program began, current data support the need fo
r renewed efforts to improve the prevention and treatment of the complicati
ons of spinal cord injury. (C) 1999 by the American Congress of Rehabilitat
ion Medicine and the American Academy of Physical Medicine and Rehabilitati
on.