The continent ileostomy: Long-term durability and patient satisfaction

The long-term results of the continent ileostomy are controversial. Durabil ity and patient satisfaction were evaluated by analyzing the outcome in 129 consecutive patients who had a continent ileostomy performed by one surgeo n at the University of California, San Francisco, between 1975 and 1995. A quality of-life questionnaire was sent to all patients for whom addresses w ere available (n = 121). Late outcome data could be obtained for 85 (66%) o f the 129 patients. Three of the 85 patients died with their continent ileo stomies but of unrelated causes. Fifty-one (60%) of 85 patients currently h ave the continent ileostomy (group A) (mean 15.1 years, range 2.7 to 21.7 y ears), whereas 31 (36%) of 85 have undergone conversion of continent ileost omy to conventional ileostomy (group B) (mean 5.4 years, range 0.2 to 20.4 years). Patients in group A underwent fewer major postoperative revisions ( mean 0.7, range 0 to 4) than patients in group B (mean 1.3,range 0 to 8) (t test, P = 0.088). The indications for pouch removal included valve dysfunc tion (42%), refractory pouchitis (23%), multiple fistulas (26%), Crohn's di sease (6%), and other (16%) (four patients had two indications). Eighty-sev en percent of survey respondents in group A considered their present state of health to be better than before their continent ileostomies. Fifty-seven percent and 82% of respondents in group A were not limited at all in regar d to vigorous or moderate activity, respectively. Although in approximately one third of patients the pouch had to be removed, 97% of the remaining tw o thirds have a good to excellent outcome.