Waiting for a liver transplant: the experience of patients with familial amyloidotic polyneuropathy

Citation
E. Jonsen et al., Waiting for a liver transplant: the experience of patients with familial amyloidotic polyneuropathy, J CLIN NURS, 9(1), 2000, pp. 63-70
Citations number
41
Categorie Soggetti
Public Health & Health Care Science
Journal title
JOURNAL OF CLINICAL NURSING
ISSN journal
09621067 → ACNP
Volume
9
Issue
1
Year of publication
2000
Pages
63 - 70
Database
ISI
SICI code
0962-1067(200001)9:1<63:WFALTT>2.0.ZU;2-5
Abstract
Liver transplant is a new treatment for familial amyloidotic polyneuropathy . The purpose of this phenomenological study is to describe the experience of waiting for a liver transplant from the familial amyloidotic polyneuropath y patients' perspective. Unstructured and open-ended interviews were conducted with 14 familial amyl oidotic polyneuropathy patients and the analysis of data was inspired by Co laizzi's method. Waiting was found to involve two theme categories: waiting for a decision; and waiting for the operation. Seven themes were identified: bargaining wit h oneself; no influence/powerlessness; relief and joy; impatience; agony; t ime to prepare; and need for information and support. Implications for nursing practice, such as informational and emotional supp ort, are discussed.