The Swedish Society of Chest Medicine has started a national register of pa
tients on home mechanical ventilation, to establish reliable national preva
lence data and to accurately document patient and treatment characteristics
to enable a scientific evaluation of this treatment.
In this first collection of retrospective register data, covering patients
on home mechanical ventilation at the register start on I January 1996, we
found 541 patients, corresponding to 6.1/100 000 inhabitants, using home me
chanical ventilation. Non-invasive ventilation, night-time ventilation and
volume controlled ventilation dominated.
We found four diagnosis categories of approximately equal size, namely post
-polio, chest wall deformities, neuromuscular diseases and 'other diseases'
. The age distribution was bimodal, with one small peak in the 20-29 year g
roup and a large peak in the 60-69 year group. A survey of Danish patients
on home mechanical ventilation showed that they were considerably younger a
nd that almost half of them suffered from neuromuscular diseases. Further w
ork will be done to follow the situation in Sweden and in Denmark to elucid
ate the obvious differences in the selection of patients for home mechanica
l ventilation (C) 2000 HARCOURT PUBLISHERS LTD.