Objectives: To describe in detail the nature of the specialist nurse Interv
entions: to increase understanding of the principal problems facing stroke
patients and their care-givers In the first year following stroke and to de
monstrate how these problems may change over time: and to Investigate the v
alue of qualitative research methodologies within the context of a randomiz
ed trial.
Methods: Specialist nurses providing support in the year following stroke !
;were asked to maintain comprehensive written records of their involvement
with all patients and care-givers participating in a randomized controlled
trial. Qualitative methods were used to examine the problems faced by strok
e patients and their care-givers, and the actions taken by nurses rn respon
se.
Results: Specialist nurses commenced 120 records. As 19 patients died or le
ft the area during the year-long Interventions, we obtained 101 complete re
cords. The problems encountered by stroke patients and their care-givers we
re numerous, diverse, complex and changed over time. Initially, practical d
ifficulties were noted; over time, these were accompanied by growing number
s of psychological needs. The nurses responded by providing information, ad
vice, support and monitoring using a flexible, Individualized approach. The
nurses also collaborated or liaised with 17 other professional groups and
provided direct support to care-givers.
Conclusion: The need for many stroke patients and their care-givers to be p
rofessionally supported during the stages of stroke adjustment, for at leas
t the first year and probably beyond, was emphasized by this study.