Acj. Huygen et al., Psychological, behavioural, and social adjustment in children and adolescents with juvenile chronic arthritis, ANN RHEUM D, 59(4), 2000, pp. 276-282
Objective-To assess the psychological, behavioural and social adjustment of
children (7-11 years) and adolescents (12-16 years) with juvenile chronic
arthritis (JCA). Higher rates of maladjustment were expected to be found in
these patients.
Methods-Self report questionnaires were used within the context of personal
interviews. Family functioning and social support were studied as well. Fo
rty seven patients with JCA, 52 healthy peers and their respective parents
participated in the study.
Results-Self esteem, perceived competence and body image in patients with J
CA were as positive as they were in healthy participants. There were no dif
ferences between ill and healthy youngsters with respect to the incidence o
f psychopathology. Patients with JCA, in general, perceived themselves as s
ocially competent, but they seemed to have somewhat less opportunity or ene
rgy to participate in social activities. Children with JCA showed a high le
vel of aspiration to cope with social expectations. This aspiration seemed
to be even stronger in case the disease caused more strains, for example, i
n periods of inflammation and in the systemic onset type. The high level of
social adjustment in children with JCA seemed to be supported by highly co
hesive family structures. Generally, adolescents with JCA experienced much
social support.
Conclusions-In contrast with our expectation, children and adolescents with
JCA seemeed to cope quite well with the psychological and social consequen
ces of their long term condition. For future studies, it is hypothesised th
at the high levels of adaptation might imply an enduring psychological stra
in, which is reflected in an altered function of the autonomic nervous syst
em.