M. Decruyenaere et al., Predictive testing for hereditary breast and ovarian cancer: a psychological framework for pre-test counselling, EUR J HUM G, 8(2), 2000, pp. 130-136
Since the identification of two breast-ovarian cancer susceptibility genes
(BRCA 1/2), predictive testing for hereditary breast/ovarian cancer (HBOC)
has been available. Given the complexity and uncertainties of HBOC and the
potential impact of predictive testing on psychological well-being, we offe
r the test applicants a combination of information-oriented and psychologic
al counselling. In this paper, we describe the multidisciplinary approach f
or predictive testing for HBOC as a clinical service in Leuven, hereby focu
sing on psychological and decision counselling practice. Attention is paid
to the theoretical framework used for pre-test psychological counselling in
Leuven. We discuss three important interacting dimensions of psychological
counselling: individual emotional support, decision counselling and suppor
t of the family communication process. Decision counselling consists of an
evaluation of the cognitive and the emotional processing of the information
given and strategies and resources for coping. This serves as a starting p
oint to facilitate free informed decision making. Scenario development is u
sed as a decision aid.