Predictive testing for hereditary breast and ovarian cancer: a psychological framework for pre-test counselling

Citation
M. Decruyenaere et al., Predictive testing for hereditary breast and ovarian cancer: a psychological framework for pre-test counselling, EUR J HUM G, 8(2), 2000, pp. 130-136
Citations number
61
Categorie Soggetti
Molecular Biology & Genetics
Journal title
EUROPEAN JOURNAL OF HUMAN GENETICS
ISSN journal
10184813 → ACNP
Volume
8
Issue
2
Year of publication
2000
Pages
130 - 136
Database
ISI
SICI code
1018-4813(200002)8:2<130:PTFHBA>2.0.ZU;2-R
Abstract
Since the identification of two breast-ovarian cancer susceptibility genes (BRCA 1/2), predictive testing for hereditary breast/ovarian cancer (HBOC) has been available. Given the complexity and uncertainties of HBOC and the potential impact of predictive testing on psychological well-being, we offe r the test applicants a combination of information-oriented and psychologic al counselling. In this paper, we describe the multidisciplinary approach f or predictive testing for HBOC as a clinical service in Leuven, hereby focu sing on psychological and decision counselling practice. Attention is paid to the theoretical framework used for pre-test psychological counselling in Leuven. We discuss three important interacting dimensions of psychological counselling: individual emotional support, decision counselling and suppor t of the family communication process. Decision counselling consists of an evaluation of the cognitive and the emotional processing of the information given and strategies and resources for coping. This serves as a starting p oint to facilitate free informed decision making. Scenario development is u sed as a decision aid.