Objective. Recently a new form of nurse clinic for people with rheumatic di
seases has been introduced into Dutch health care. This study gives insight
into: (i) patients' perceptions about the quality and continuity of care g
iven at these (transmural) nurse clinics; and (ii) specialized rheumatology
nurses' and rheumatologists' perceptions about the quality and continuity
of care in the clinics.
Design. Validated measurement tools (QUOTE and QCC) were used, before and a
fter patients visited a clinic, to determine patient perceptions about the
quality and continuity of care. Semi-structured interviews with professiona
ls were used to gather information about their perceptions.
Setting. The study was carried out at five locations in The Netherlands whe
re a home care organization and a general hospital collaborated closely and
had joint responsibility for a transmural rheumatology nurse clinic.
Study participants. A total of 128 patients, six specialist rheumatology nu
rses and four rheumatologists.
Intervention. Transmural nurse clinics for people with rheumatic diseases.
Results. In general, patients were positive about the quality and continuit
y of care given at the clinics. Some continuity aspects, like the presence
of a locum nurse and providing the locum with sufficient information could
be improved. Professionals were positive about the information given at the
clinics, which is additional to the information given by a rheumatologist.
Professionals were less positive about some of the clinics' preconditions.
Conclusion. In this study, a control group (e.g. patients who received stan
dard rheumatologist care) was not available. However, in comparison with pa
tients' experiences of standard medical care in other (comparable) research
, patients' experiences in this study were very positive. It was concluded
that Dutch transmural nurse clinics, to a large extent, meet patients' and
professionals' expectations and were a positive development in the care of
rheumatic patients.