OBJECTIVE: To evaluate prospectively seriously ill patients' characteristic
s, perceptions, and preferences associated with discussing resuscitation (C
PR) with their physicians.
DESIGN: Prospective cohort.
SETTING: Five academic medical centers.
PARTICIPANTS: Patients enrolled in the Study to Understand Prognoses and Pr
eferences for Outcomes and Risks of Treatments who had not communicated wit
h their physicians about CPR at admission to a hospital for life-threatenin
g illness (n = 1288).
MEASUREMENTS: Baseline surveys of patients' characteristics, health status,
desires for participation in medical decision making, and cardiopulmonary
resuscitation. Two month follow-up surveys of patients' communication of re
suscitation preference. Chart reviews for clinical indicators.
RESULTS: Thirty percent of patients communicated their resuscitation prefer
ence to their physician during a 2 month-period following hospital admissio
n. Patients whose preference was to forgo CPR (odds ratio (OR) 2.9;(95% CT,
1.94.2)) and whose preference had changed from desiring to forgoing CPR (O
R 1.6; (95% CI, 1.1-2.4)) were more likely to communicate their preference
than patients who continued to prefer to receive CPR. However, only 50 % of
patients who maintained a preference to forgo CPR communicated this over a
2-month period. Having an advance directive and remaining in the hospital
at 2-month follow-up were also independently associated with communication,
whereas patients' preference for participation in decision-making, health
status, and prognostic estimate were not.
CONCLUSIONS: Communication about resuscitation preferences occurred infrequ
ently after hospital admission for a serious illness, even among patients w
ishing to forgo resuscitation. Factors such as declining quality of life, w
hich were expected to be associated with communication, were not. An invita
tion to communicate about CPR preference is important after hospital admiss
ion for a serious illness. Novel approaches are needed to promote physician
-patient discussions about resuscitation.