Objective-To determine if appropriate advice had been given to adults with
congenital heart disease regarding safe and effective exercise, and to asse
ss pre-existing misconceptions of the potential benefits and dangers of exe
rcise.
Design-An anonymous self assessment questionnaire.
Setting-A tertiary referral clinic.
Patients-99 adults (57 men, 42 women) with congenital heart disease, mean a
ge 25.6 years.
Main outcome measures-The extent and nature of exercise advice given over p
revious years; a measure of current activity level compared with the Americ
an Heart Association recommendations; and an assessment of exercise limitin
g symptoms and a description of barriers to further exercise.
Results-44% of the cohort assumed all exercise was safe despite their cardi
ac disease. A health care professional had only raised the issue of specifi
c exercise advice in 28 cases. Of those given instruction it was more commo
n to receive prohibitive advice (30%) than to be encouraged to take more ex
ercise (19%). Despite this 61% were involved in some form of at least light
exercise. The most prevalent barriers to exercise were current symptoms (3
2.3%), lack of interest in exercise (24.2%), and health fears (16.1%).
Conclusions-The education of adults with congenital heart disease regarding
exercise and its potential benefits and limitations is suboptimal even in
a specialist clinic.