S. Saigal, Perception of health status and quality of life of extremely low-birth weight survivors - The consumer, the provider, and the child, CLIN PERIN, 27(2), 2000, pp. 403
In neonatal intensive care, parents make important clinical management deci
sions in conjunction with health professionals. Little information is avail
able in the literature, however, on whether the preferences of health care
professionals, parents, and children differ for the resulting health outcom
es. This article compares the preferences of these stakeholders for four to
five hypothetical health states that are common to extremely low-birth wei
ght infants. The findings have conceptual and practical implications for de
cision making in the neonatal intensive care unit.