Self-report versus performance-based activities of daily living capacity among heart transplant candidates and their caregivers

Transplant candidates completed the Every Day Problems test (EPT), a perfor mance-based measure of instrumental activities of daily living (IADL), and the Katz self-report scale of IADL functioning. Caregivers estimated the ca ndidate's IADL capacity using the Katz scale. A healthy community group and patients with cardiac disease not undergoing transplant evaluation and the ir caregivers served as controls. Discrepancies between the EPT and Katz sc ales were generated. Results showed that the total number of discrepancies was significantly higher among the two patient groups as compared to contro ls. Three or more discrepancies (a total of 7 IADL domains were assessed) o ccurred in 40-52% of the participants and their caregivers in the two patie nt groups. Similarly, the total number of discrepancies between the Katz sc ale of the participant and their caregiver was significantly higher among t he two patient groups as compared to controls, with only 33-44% showing per fect agreement in the patient groups as compared to 97% among controls. Des pite a high prevalence of discrepancies in both patient groups, results did not support the hypothesis that transplant candidates tend systematically to overestimate their ability level on self-report IADL measures.