"What do you think about genetic medicine?" - Facilitating sociable publicdiscourse on developments in the new genetics

Citation
I. Barns et al., "What do you think about genetic medicine?" - Facilitating sociable publicdiscourse on developments in the new genetics, SCI TECHNOL, 25(3), 2000, pp. 283-308
Citations number
47
Categorie Soggetti
Social Work & Social Policy
Journal title
SCIENCE TECHNOLOGY & HUMAN VALUES
ISSN journal
01622439 → ACNP
Volume
25
Issue
3
Year of publication
2000
Pages
283 - 308
Database
ISI
SICI code
0162-2439(200022)25:3<283:"DYTAG>2.0.ZU;2-A
Abstract
An important aspect of any meaningful public discussion about developments in gene technology is the provision of opportunities for interested publics to engage in sociable public discourse with other lay people and with expe rts. This article reports on a series of peer group conversations conducted in late 1996 and early 1997 with sixteen community groups in Perth, Wester n Australia, interested in gene therapy technology. With the case of cystic fibrosis as a particular focus, and using background resource material as a stimulus for discussion, the participating groups explored a range of val ue issues arising from the new genetic medicine. This more discursive conte xt enabled participants to express a number of background or life-world con cerns about genetic medicine, concerns that are often obscured by the domin ant biomedical and bioethical discourses.