Cb. Fisher et Sa. Wallace, Through the community looking glass: Reevaluating the ethical and policy implications of research on adolescent risk and psychopathology, ETHIC BEHAV, 10(2), 2000, pp. 99-118
Drawing on a conception of scientists and community members as partners in
the construction of ethically responsible research practices, this article
urges investigators to seek the perspectives of teenagers and parents in ev
aluating the personal and political costs and benefits of research on adole
scent risk behaviors. Content analysis of focus group discussions involving
over 100 parents and teenagers from diverse ethnic and socioeconomic backg
rounds revealed community opinions regarding the scientific merit, social v
alue, racial bias, and participant and group harms and benefits associated
with surveys, informant reports, intervention studies, blood sampling, and
genetic research on youth problems. Participant comments highlight new dire
ctions for socially responsible research.