Public disclosure of a child's HIV infection: Impact on children and families

As an increasing number of children infected with HIV live to older ages, t he question of disclosure of the diagnosis (to the child and to others) bec omes more crucial. Disclosure of a child's HIV diagnosis is a controversial and emotionally laden issue. One reason that families avoid disclosure is their fear of the negative impact on the child and family that the stigma a ssociated with AIDS can bring. At the other end of the spectrum, are those families that choose to publicly disclose an HIV diagnosis. There are a num ber of reasons that a family may choose to go public with their child's dia gnosis, although this has never been systematically assessed. The dearth of literature and research regarding the emotional impact of public life on a child as well as the interest of a number of non-public HIV-infected child ren to "go public" served as an impetus to conduct a study that directly ex amined the impact public disclosure has on the HIV-infected child and famil y. Specifically, findings pertaining to the decision making process, the im pact public disclosure has had on the child's family, and the child's sense of self-worth at the time of the study and then again 4 years later are re viewed. Findings and implications for future research as well as interventi ons and strategies aimed at counseling families considering "going public" and helping to normalize the public child's life are discussed.