Am. Napoles-springer et al., Clinical research with older African Americans and Latinos - Perspectives from the community, RES AGING, 22(6), 2000, pp. 668-691
This study examines the social and health priorities of older African Ameri
cans and Latinos and their attitudes about participation in clinical resear
ch. Focus group discussions were conducted with older Latinos and African A
mericans, and a survey was mailed to key informants from 117 community-base
d organizations serving primarily older African Americans or Latinos. Resul
ts indicate that affordable housing, enough money to meet their needs, adeq
uate transportation, and safer neighborhoods were urgent priorities for old
er Latinos and African Americans and superseded their health concerns. Dist
rust of researchers, lack of information, caregiver obligations, fear of ex
perimentation, and lack of benefits were identified as barriers to research
participation. Results indicate that community members are willing to part
icipate in research provided they are fully informed of the research and pe
rceive tangible benefits and congruence between the objectives of researche
rs and participants.