F. Wong et al., Men with prostate cancer: influence of psychological factors on informational needs and decision making, J PSYCHOSOM, 49(1), 2000, pp. 13-19
Objectives: Studies indicate that men with prostate cancer (MPC) adopt pass
ive roles in cancer management; however, increasing public awareness of pro
state cancer and advocacy by MPC and their allies suggest otherwise. This s
tudy looks at the information that is important to MPC; their preferred par
ticipation in decision making; and the influence of sociodemographic, disea
se, and psychological factors on information needs and decision preferences
. Method: Consecutive men diagnosed with prostate cancer and attending two
tertiary care cancer clinics completed questionnaires on information needs
and decision preferences. Questions included demographic information, healt
h and disease status, psychosocial functioning, optimism, and decisional pr
eferences and information preferences for content, type, focus, format, and
amount. Results: Questionnaires were completed by 101 MPC. Their mean age
was 70 years and most were married and well-educated Over 70% wanted detail
ed information at all illness stages focusing on their disease, treatment,
survival, self-care, and empowerment. Over 60% of MPC wanted shared decisio
n making with their physician. Psychological variables were found to influe
nce information needs but not involvement in decision making. Conclusion: T
hese results represent a challenge to health-care providers for accomodatin
g the informational needs and decision preferences of individual MPC. (C) 2
000 Elsevier Science Inc. All rights reserved.