Purpose: To explore the perceived life and identity changes described by in
dividuals following a single stroke using a life narrative approach.
Method: Individuals admitted to hospital with a stroke, no previous disabil
ity, returning home; took part in life narrative interviews in hospital, an
d six months and one year post-discharge. The Gross Motor subscale of the R
ivermead Motor Assessment and Nottingham 10 point Activities of Daily Livin
g Scale were completed.
Results: Eight stroke respondents (five male, three female; mean age 67 yea
rs (range 56-82). The one year mean motor score was 9 (range 7-11) and self
-care score was 9 (range 7-10). All respondents described a fundamental cha
nge in their lives and identity. The main issue was a split between themsel
ves and their body. In hospital their body appeared to become separate, pre
carious and perplexing. By one year the majority still found their body unr
eliable, and their physical ability influenced by the social setting.
Conclusion: The new experience of a split between self and body appears to
be the focus of life for at least a year. This study suggests that rehabili
tation professionals should consider longer-term (although not necessarily
intensive) physical activity programmes that address these psychological as
well as neuromuscular changes.