Objective: To study the health status and medical consumption of outpa
tients with active epilepsy in comparison with the general population.
Design: Descriptive population study (multi-stage random sample). Set
ting: Structured questionnaire. Patients: Thirty-nine epilepsy patient
s compared with a general population of 12,975. Results: Epilepsy pati
ents revealed poorer health, a higher mean complaint score (5.3 versus
3.7, P < 0.05), a higher score on the General Health Questionnaire (P
< 0.05), a somewhat higher score on the biological problem list (BIOP
RO) (1.8 versus 1.4, P > 0.05), less active sports engagement (16% ver
sus 39%, P < 0.01), more fatigue (46 vs 29%, P < 0.05), dizziness (33
vs 10%, P < 0.01), nervousness (28 vs 10%, P > 0.05), sleep disturbanc
e (23 vs 15%, P > 0.05) and excitability (33 vs 15%, P < 0.01) when co
mpared with the general population. The BIOPRO showed problems in epil
epsy patients on specific items related to self-confidence (P < 0.001)
. Epileptic patients do not show more absence due to illness, from wor
k, school or at home (15 vs 18%, P > 0.05) and/or more problems at wor
k or in the family when compared with the general population. Almost h
alf of epilepsy patients had consulted a specialist in the past 2 mont
hs (46 vs 23% of the general population, P < 0.001). Epilepsy patients
consulted the family physician slightly more often than other respond
ers (3.0 versus 2.3, P > 0.05) and contacted the family physician's as
sistant considerably more often (2.3 versus 0.7, P < 0.001). One-third
of epilepsy patients consulted an alternative healer in the past 5 ye
ars versus 14%; in the general population (P < 0.001). Conclusions: Th
e study shows an excess of psychosocial problems and medical consumpti
on in epilepsy patients, but not more absence from work or problems at
work or in the family. Further development of a quality of life instr
ument specific to epilepsy is advised.