How do AD patients and their caregivers decide whether to enroll in a clinical trial?

Citation
Jht. Karlawish et al., How do AD patients and their caregivers decide whether to enroll in a clinical trial?, NEUROLOGY, 56(6), 2001, pp. 789-792
Citations number
6
Categorie Soggetti
Neurology,"Neurosciences & Behavoir
Journal title
NEUROLOGY
ISSN journal
00283878 → ACNP
Volume
56
Issue
6
Year of publication
2001
Pages
789 - 792
Database
ISI
SICI code
0028-3878(20010327)56:6<789:HDAPAT>2.0.ZU;2-L
Abstract
To examine how patients and caregivers decide whether to enroll in a clinic al trial, the authors conducted semi-structured interviews with 22 family c aregivers of patients with mild to moderate AD who were recruited for a cli nical trial. They found that a caregiver who enrolls a patient in research generally involves the patient in the decision-making process, reports that the patient shares in the decision, and regards the risks and benefits to the patient and to the caregiver as interdependent.