We surveyed the membership of aphasia self-help groups in England. We wante
d to knew what kinds of people become members and the factors associated wi
th taking an active role. So we aimed to describe the membership in terms o
f age, aphasia severity, physical state, socio-economic status and group ro
les. We collected data on 135 members and found them relatively less severe
but mainly chronically aphasic, living in their own homes and close to the
group meeting place, using their own or public transport, with little comm
unity or state aid. While hemiplegia was common, few were wheelchair bound.
Those taking active roles were younger and less severely aphasic and from
more professional and managerial socio-economic groups.