Health status of children with moderate to severe cerebral palsy

Citation
Gs. Liptak et al., Health status of children with moderate to severe cerebral palsy, DEVELOP MED, 43(6), 2001, pp. 364-370
Citations number
30
Categorie Soggetti
Pediatrics,"Neurosciences & Behavoir
Journal title
DEVELOPMENTAL MEDICINE AND CHILD NEUROLOGY
ISSN journal
00121622 → ACNP
Volume
43
Issue
6
Year of publication
2001
Pages
364 - 370
Database
ISI
SICI code
0012-1622(200106)43:6<364:HSOCWM>2.0.ZU;2-9
Abstract
The aim of the study was to evaluate the health of children with cerebral p alsy (CP) using a global assessment of quality of life, condition-specific measures, and assessments of health care use. A multicenter population-base d cross-sectional survey of 235 children, aged 2 to 18 years, with moderate to severe impairment, was carried out using Gross Motor Function Classific ation System (GMFCS) levels III (n = 56),IV (n = 55), and V (n = 122), This study group scored significantly below the mean on the Child Health Questi onnaire (CHQ) for Pain, General Health, Physical Functioning, and Impact on Parents. These children used more medications than children without CP fro m a national sample, Fifty-nine children used feeding tubes, Children in GM FCS level V who used a feeding tube had the lowest estimate of mental age, required the most health care resources, used the most medications, had the most respiratory problems, and had the lowest Global Health scores, Childr en with the most severe motor disability who have feeding tubes are an espe cially frail group who require numerous health-related resources and treatm ents, Also, there is a relationship among measures of health status such as the CHQ, functional abilities, use of resources, and mental age, but each appears to measure different aspects of health and well-being and should be used in combination to reflect children's overall health status.