Despite major advances in our understanding of the molecular pathology, pat
hophysiology, and control and management of the inherited disorders of haem
oglobin, thousands of infants and children with these diseases are dying th
rough lack of appropriate medical care. This problem Will undoubtedly incre
ase over the next 20 years because, as the result of a reduction in childho
od mortality due to infection and malnutrition, more babies with haemoglobi
n disorders will survive to present for treatment. Although WHO and various
voluntary agencies have tried to disseminate information about these disea
ses, they are rarely mentioned as being sufficiently important to be includ
ed in setting health care priorities for the future. It takes considerable
time to establish expertise in developing programmes for the control and ma
nagement of these conditions, and the lessons learned in developed countrie
s will need to be transmitted to those countries in which they occur at a h
igh frequency.