Concepts and data model for a co-operative neurovascular database

Background. Problems of clinical management of neurovascular diseases are v ery complex. This is caused by the chronic character of the diseases, a lon g history of symptoms and diverse treatments, If patients are to benefit fr om treatment, then treatment decisions have to rely on reliable and accurat e knowledge of the natural history of the disease and the various treatment s. Methods. Recent developments in statistical methodology and experience from electronic patient records are used to establish an information infrastruc ture based on a centralized register. Results. A protocol to collect data on neurovascular diseases with technica l as well a logistical aspects of implementing a database for neurovascular diseases are described. The database is designed as a co-operative tool of audit and research available to co-operating centres. Conclusion. When a database is linked to a systematic patient follow-up, it can be used to study prognosis. Careful analysis of patient outcome is val uable for decision-making.