Ten registered nurses working in a neonatal intensive care unit in Hong Kon
g were interviewed to explore their experiences of caring for infants whose
disease is not responsive to curative treatment, their perceptions of pall
iative care, and factors influencing their care.
Eight categories emerged from the content analysis of the interviews: disbe
lieving; feeling ambivalent and helpless; protecting emotional self; provid
ing optimal physical care to the infant; providing emotional support to the
family; expressing empathy; lack of knowledge and counselling skills; and
conflicting values in care.
The subtle cultural upbringing and socialization in nurse training and work
place environment also contributed to their moral distress.
Hospital and nurse administrators should consider different ways of facilit
ating palliative care in their acute care settings. For example, by culture
-specific death education, peer support groups, bereavement teams, modifica
tion of departmental policies, and a supportive work environment.
Future research could include the identification of family needs and coping
as well as ethical decision-making among nurses.