Prevalence and morbidity associated with non-malignant, life-threatening conditions in childhood

Objective To determine the prevalence of non-malignant life-threatening ill ness in childhood and associated morbidity in the affected child and their family members. Design Cross-sectional survey. Setting Bath Clinical Area (total population 411 800). Subjects Children aged 0-19 years. Results One hundred and twenty-three children were identified, giving a pre valence of 1.2/1000 children. Morbidity assessed in 93 children showed 60% in pain or discomfort, 35% unable to walk and 25% with severe cognitive imp airment. Mental health problems were found in 54% of mothers and 30% of fat hers, and significant emotional and behavioural problems in 24% of healthy siblings. Conclusions Non-malignant life-threatening illness is more prevalent than r eported in previous studies. Considerable morbidity is experienced by the c hild and their family. An individual and family approach is required. Key messages (1)The prevalence of non-malignant life-threatening illness is four times greater than previous estimates. (2) This group of conditions h ave significant implications for all family members. (3) Early comprehensiv e assessment and access to effective interventions may pre-empt later probl ems.