Predictive genetic testing should only be performed on children if it is in
their best interests. "Interests" include psychosocial elements.
Predictive testing is performed on children when there are interventions to
prevent disease or to detect and treat it early and it is necessary to beg
in these interventions in childhood. It is also performed for diseases know
n to commence in childhood.
Predictive testing in children for adult-onset conditions for which there i
s no medical intervention is highly controversial.
Competent children and adolescents can consent to predictive genetic testin
g.
Predictive testing can result in harm, such as discrimination (eg, in insur
ance entitlement or employment) and stigmatisation.
Predictive testing can have important non-medical benefits in terms of self
-knowledge and life planning.