Perception of risk, anxiety, psychological distress, and early detection be
havior were investigated in 23 women with a family history of breast cancer
who attended genetic counseling and 21 women without a family history of b
reast cancer. In addition to a breast cancer-specific questionnaire, the Sy
mptom Checklist 90-Revised and the State-Trait Anxiety Inventory were used.
Thirty-nine percent of the women with a family history of breast cancer co
rrectly identified and 48% overestimated their own lifetime risk. Risk perc
eption was independent of genetic counseling. Levels of general psychologic
al morbidity were similar between women with a family history of breast can
cer and controls. For controls, early detection behavior was related to lif
etime risk estimate and was, in general, independent of level of anxiety. D
espite genetic counseling, many women continued to perceive their own lifet
ime risk of breast cancer inaccurately. They might benefit from additional
counseling on risk assessment.