P. Nicolson et P. Anderson, The psychosocial impact of spasticity-related problems for people with multiple sclerosis: A focus group study, J HEAL PSYC, 6(5), 2001, pp. 551-567
This focus group, qualitative study (N = 18) reports the psychosocial impac
t, specifically, of spasticity symptoms on a sample of people with MS (mult
iple sclerosis). MS, a chronic disabling disease which attacks the central
nervous system, currently affects about 100,000 people in the UK and estima
tes indicate that worldwide prevalence varies from around 10 to 250 per 100
,000. The cause remains unknown and the rate of disease progression varies
among individuals. The disease of MS itself has a severe impact on psycholo
gical well-being and quality of life. However, there is little evidence abo
ut the additional impact of the spasticity-related symptoms, which include
involuntary muscle contractions, loss of dexterity, loss of balance, incont
inence and pain. These are shown here to lead to further distress and embar
rassment and to have a detrimental influence on emotional and social relati
onships.