Objectives: To document the mammography data that are gathered by the organ
ized screening programs participating in the International Breast Cancer Sc
reening Network (IBSN), the nature of their procedures for data quality ass
urance, and the measures used to assess program performance and impact.
Methods: A detailed questionnaire covering multiple aspects of quality assu
rance in screening mammography was mailed to IBSN representatives in 23 cou
ntries.
Results: Countries collect a wealth of screening mammography data, much of
it computerized. Most countries have designated staff for data quality assu
rance. All provide staff training, and most have documentation requirements
for data collection. Nearly all have one or more procedures to maintain da
ta confidentiality. Countries are heterogeneous in collecting and assessing
data to monitor screening program performance and
impact. Conclusions: Demonstrating that population-based screening mammogra
phy reduces breast cancer mortality requires collection of high-quality dat
a on key aspects of the multi-step screening process. Assuring the quality
of data collection systems for screening mammography programs is an importa
nt and evolving area for IBSN countries.