Scales for evaluation of end-of-life care in dementia

Systematic evaluation of end-of-life care in dementia has been hampered by a lack of instruments to specifically address those issues that are unique for persons who are dying with dementia. This study evaluated psychometric properties of three scales designed to measure outcomes of care of persons suffering from terminal dementia. A survey of family caregivers hose loved one died during the past ear was conducted using a questionnaire that inclu ded questions regarding satisfaction xith care. physical and emotional symp toms that occurred during the last 90 days of the care recipient's life and comfort during the dying process. Three scales were developed based on res ponse from 156 questionnaires: Satisfaction with Care at the End-of-Life in Dementia (SWC-EOLD). Symptom Management at the End-of-Life in Dementia (SM -EOLD) with Physical and Psychological Symptoms subscales, and Comfort Asse ssment in Dying xith Dementia (CAD-EOLD) vith four subscales: Physical Dist ress, Dying symptoms. Emotional Distress, and Well Being. The three scales developed and evaluated in this studs can be used as outcome measures in st udies investigating effectiveness of interventions aimed to improve end-of- life care for individuals with dementia.