This study aims to discover (1) how relatives adjust to their new life situ
ations following the death of a patient with cancer in hospice and (2) how
those relatives have been supported by healthcare professionals both before
and after the patient's death.
The data were collected with a structured questionnaire administered to rel
atives of patients with cancer who died in a Finnish hospice in 1998 and 19
99. The questionnaires were administered by the hospice staff to all family
members who met the criteria specified (n = 589). The final sample compris
ed 258 family members, most of whom were the deceased patients' spouses. Th
e Mann-Whitney U-test and the Kruskal-Wallis test were used to analyze the
data. instrument reliability was ascertained by the Cronbach alpha coeffici
ent.
The relatives had little difficulty accepting their new life situation and
adjusting to their new role. The main factors affecting adjustment were bei
ng the patient's spouse and the age of both patient and relative.
Relatives believed that they received a moderate amount of support from hea
lthcare professionals, both before and after the patient's death. Most of t
he information they received concerned the patient's illness and treatment
and daily condition. Communication was honest and based upon the relatives'
needs. Emotional support before the patient's death consisted mainly of ac
cepting the relative and listening to what relatives had to say.