THE SURVIVORS OF GASTROSCHISIS

Aims-To assess the long term morbidity and quality of life in survivor s of gastroschisis. Design-All babies born with gastroschisis between 1972 and 1984 and who survived more than one year were identified. Tho se who could be traced were questioned about their general health, gro wth, abdominal symptoms, cosmetic concerns, education, employment, and fertility. Results-Of the 35 patients, two have died, seven could not be traced, and three declined to be interviewed. Twenty three subject s (70% of survivors) with a median age of 16 years (range 12-23 years) responded. Twenty two (96%) were in good health and overall growth wa s within normal limits. Eight subjects (35%) have had further surgery related to gastroschisis, including two for adhesive small bowel obstr uction and three for scar complications. In 13 (57%), absence of an um bilicus caused distress during childhood. Conclusion-Most gastroschisi s survivors can eventually expect normal growth and good health. Adhes ive bowel obstruction is an uncommon, but potentially late, complicati on. The umbilicus should be conserved during gastroschisis repair.