R. Schulz et al., HEALTH-EFFECTS OF CAREGIVING - THE CAREGIVER HEALTH-EFFECTS STUDY - AN ANCILLARY STUDY OF THE CARDIOVASCULAR HEALTH STUDY, Annals of behavioral medicine, 19(2), 1997, pp. 110-116
We propose that two related sources of variability in studies of careg
iving health effects contribute to an inconsistent pattern of findings
: the sampling strategy used and the definition of what constitutes ca
regiving. Samples are often recruited through self-referral and are ty
pically comprised of caregivers experiencing considerable distress. In
this study, we examine the health effects of caregiving in large popu
lation-based samples of spousal caregivers and controls using a wide a
rray of objective and self-report physical and mental health outcome m
easures. By applying different definitions of caregiving, we show that
the magnitude of health effects attributable to caregiving can vary s
ubstantially with the largest negative health effects observed among c
aregivers who characterize themselves as being strained. From an epide
miological perspective, our data show that approximately 80% of person
s living with a spouse with a disability provide care to their spouse,
but only half of care providers report mental or physical strain asso
ciated with caregiving.