Tp. Mcdonald et al., BUILDING A MODEL OF FAMILY CAREGIVING FOR CHILDREN WITH EMOTIONAL DISORDERS, Journal of emotional and behavioral disorders, 5(3), 1997, pp. 138-148
In this article we describe the results of an ongoing effort to better
understand the caregiving process in families of children with severe
emotional problems. We make two assumptions. First, we assume that th
ese families are essentially like other families hut are faced with a
special challenge in raising and caring for their special children whi
le at the same rime performing the multiple tasks and demands faced by
all families. Second, we assume chat public policy and programs must
be supportive of the care of these children in their own homes and com
munities whenever possible. The purpose of this article is to present
a model of family caregiving that draws broadly from available theory
and empirical literature in multiple fields and to subject this model
to empirical testing. We use structural equation modeling with latent
variables to estimate an empirical model based on the theoretical mode
l. Results of the model testing point to the importance of the child's
external problem behaviors and the family's socioeconomic status and
coping strategies as determinants of caregiver stress. Other findings
highlight difficulties in measuring and modeling the complex mediating
process, which includes formal and informal supports, perceptions, an
d coping behaviors. The use of structural equation modeling can benefi
t our efforts to support families by making explicit out theories abou
t the important dimensions of this process and the relationship betwee
n these dimensions, which can then be subjected ro measurement and val
idation.